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- Thu Jan 04, 2007 9:52 am
my daughter is now 21, diagnosed with dilated cardiomyopathy in march of 05. her ef then was 35%. i have posted her last echo results on another forum. after seeing her cardio last week, and reviewing her cardiac mri and tee, he has added inspra to the 50 mgs of coreg and 2.5 mgs 2x day of vasotec, her ef on latest tests was still only 35%. her mitral valve regurg has increased, from mild to moderate. she has what is called an anuerysmal bulge near the mitral-aortic junction, tee and cardiac mri showed blood flow within it. this abnormality has been present since birth. at some point i believe the valve will need to replaced, as the leakage is increasing. is she considered stable even though her ef has not improved in spite of meds? i don't want to see her become less stable and then have to repair or replace this valve.
thank you ddavey
| John Kenyon, CNA
- Fri Jan 05, 2007 12:21 am
Hi ddavey - "Stable" needs some clarification in this context, as an EF of 35 would be considered by some to be a reason to call the patient unstable. However, since it has not gotten lower, technically she remains stable. How well she is able to function is also going to be a factor in whether or not she is labeled "stable." If she can get through her day without severe symptoms and her EF hasn't decreased then she is holding her ground, although one would have hoped the additional medication might have caused the EF to go up some, but at the same time the mitral regurg has increased also, which is probably why the number is only the same.
Replacing the valve will likely have the most marked effect on EF,
and this may involve a repair of the aneurismal bulge at the same time. All this could serve to "tighten" the left heart function and improve the picture dramatically, but the doctors undoubtedly have given this due consideration.
Please keep us updated. Good luck to you.