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Doctors Lounge - Cardiology Answers
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| mb061574
- Sun Jul 17, 2005 12:30 am |
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Brief history: My brother passed away very suddenly when he was 6 1/2. This was almost 13 years ago. I just got a copy of his autopsy report last week. The medical examiner called me himself and said it was extremely important that my children's pediatrician have a copy of the report. The main findiing was endocardial fibroelastosis as a result of dilated cardiomyopathy. He also had left ventricular hypertrophy as part of all this.
We had always kind of suspected Long QT syndrome as part of this. So, all 4 of my kids have had ekg's done now. 3 of them came back with left ventricular hypertrophy. My daughter had a murmur diagnosed last weekend. I was told the sounds they heard are consistent with atrial septal defect - but her ekg was fine.
My pediatrician said he is not a cardiologist, but has no problem getting us into one to discuss all this. He told me though that we had nothing to worry about. He told me he felt that the LVH was not significant since the cardiologist that read the ekg's did not call him personally about it. He also said the ASD with my daughter was nothing to worry about since the ekg was fine.
I'm VERY confused. I've been reading that LVH is commonly missed on ekg's. So, how is it that 3 of my kids may have it? Why is my concern being dismissed since we do have a familial history of that related to a sudden death in a child?
Also with the ASD, my daughter is 5 1/2, so it's my understanding that it will not close on its own now.
Am I way off base with my concern? Is it probably best to have a consult with a pediatric cardiologist and look into all of this further??
Thanks!
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| Najah
- Sun Jul 17, 2005 1:31 am |
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I agree with you that EKG may miss mild or early left ventricular hypertrophy and there are better methods for diagnosing left ventricular hypertrophy like echocardiography. Consult with a cardiologist for a re-evaluation.
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