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Center for Research on Chronic Illness
Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.
url: nursing.unc.edu/crci/
Chronic Conditions
Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.
url: www.seniornet.org/php/default.php?ClassOrgID=5337&...
Chronic Disease: Forming Healthy Relationships
Advice for doctors and health workers on treatment and support of chronic ill patients. [PDF]
url: www.buchholzmedgroup.com/articles/PDF/Chronic.pdf
Chronic Disease Management
British Columbia resources for physicians, patients and researchers. Includes success stories, self-management program, reports, research and Chronic Care Model.
url: www.healthservices.gov.bc.ca/cdm/
Chronic Disease Management
Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details.
url: www.calgaryhealthregion.ca/cdm/
Chronic Disease Prevention
Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.
url: www.cdc.gov/nccdphp/overview.htm
Chronic Disease: Prevention and Management
Calgary Health Region to host its second international conference from October 29 to November 1, 2007. Registration opens October 2006.
url: www.cdmcalgary.ca
Chronic Disease Surveillance in Canada
Background paper also proposes multi-partnered data base renewal (2003). [PDF]
url: www.phac-aspc.gc.ca/csc-ccs/pdf/hscchronic_disease...
Chronic Health Conditions not a Barrier to Successful Aging
Advice on 'successful aging' with good management of several chronic conditions by HealthLink, the Medical College of Wisconsin.
url: healthlink.mcw.edu/article/1031002459.html
Chronic Ill Net
Patients, doctors and researchers discuss diseases: Gulf War Syndrome, Chronic Fatigue Syndrome, AIDS, biological and chemical weapons. Many articles.
url: www.chronicillnet.org/index.php3?rellikehcac=eb46c...
Chronic Ill Net
Multimedia information source dedicated to chronic illnesses including AIDS, cancer, Persian Gulf War Syndrome, autoimmune diseases and neurological diseases.
url: www.chronicillnet.org
Chronic Illness: Acceptance Is the First Step Toward Healing
Short description of the day to day acceptance process.
url: www.mult-sclerosis.org/news/Oct1999/AcceptingChron...
Chronic Illness Coping
Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
url: www.mindpub.com/topic16.htm
Chronic Illness Tips
A personal account of strategies for daily living.
url: showcase.netins.net/web/fmd/chronic/
Coping with a Chronic Illness in your Family
Advice to family members, including communication, financial matters, independence and taking charge.
url: www.eldercareadvocates.com/pages/art22.htm
Coping with Chronic Illness
Patient information publication of the Warren Grant Magnuson Clinical Center at the National Institutes of Health (USA).
url: www.nlm.nih.gov/cgi/medlineplus/leavemedplus.pl?th...
Coping with Chronic Illness
An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients.
url: www.alpineguild.com/COPING%20WITH%20CHRONIC%20ILLN...
Coping with Chronic Illness
The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease.
url: www.fathersnetwork.org/647.html?page=647&SESSI...
Coping with Chronic Illness and Depression
How to recognize depression and when to consult the doctor. [PDF]
url: www.mamsi.com/s/yh/copingwithchronicillness.pdf
Coping with Long-term Physical Illness and Pain
Short explanation to counselors on defense mechanisms and coping styles of patients.
url: www.brandeis.edu/pcc/coping.html
A Day in a Life with Chronic Illness
A personal account of daily events aims to promote better understanding.
url: members.shaw.ca/zonaszone/illness/life.html
Diet, Nutrition and the Prevention of Chronic Diseases
Combined World Health Organization and Food and Agriculture Organization expert report on prevention of obesity, diabetes, cardiovascular diseases, cancer, dental diseases and osteoporosis. [PDF]
url: www.who.int/hpr/NPH/docs/who_fao_expert_report.pdf
Expert Patients Programme for Long-term Patients
Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
url: www.expertpatients.nhs.uk/
Faced with a Life Threatening Illness.
Questions, concerns and links provided by Australian Palliative Care Council.
url: www.pallcare.asn.au/
Family Caregiver Alliance
National Center on Caregiving offers fact sheets, advice, research reports, public policy briefs, and newsletters.
url: www.caregiver.org
Guidance for People Facing Serious Illness
Handbook gives short, practical advice how to handle serious illness and dying.
url: www.mywhatever.com/cifwriter/library/mortals/mor0....
Health Action Network
A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources.
url: www.procovery.com
Household Management Questions for Others with Chronic Illness
Practical advice on adjusting expectations, cleaning, time management and recommended books. Short thread in The New Homemaker.
url: www.thenewhomemaker.com/node/68558
Illness, Disability and Social Inclusion
Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. [PDF]
url: www.eurofound.eu.int/publications/files/EF0335EN.p...
Improving Chronic Illness Care
Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.
url: www.improvingchroniccare.org/
It's Your Life
E-book on chronic disease management available for free online reading or download.
url: www.stormpages.com/sbhagwat
Learning to Cope with Chronic Illness
Practical advice to patients and significant others.
url: seniors-site.com/coping/chronic.html
Living with Chronic Illness
Personal advice on making adjustments and maintaining hope.
url: aces_autoimmune.tripod.com/copingb.htm
Living with Chronic Illness and Disease
Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.
url: www.chroniclife.com
Living with Chronic Illness and Pain
Explains how lifestyle changes can be effective in self-managing a condition. From Men's Health Peer Education.
url: www.dva.gov.au/health/menshealth/12_chronic_illnes...
Living with Long Term Illness
Tips and ideas on dealing with a chronic condition in daily life. Personal site.
url: www.xs4all.nl/~nvwagen/english/
Managing Long Term Conditions (Chronic Disease Management)
A National Primary and Care Trust Development Funds program aimed to produce personalized care plans involving all medical and associated disciplines. No longer updated, it still contains valuable information for health care professionals.
url: www.natpact.nhs.uk/cms/2.php
Managing your Chronic Illness
British Columbia's patient information with links to programs.
url: www.healthservices.gov.bc.ca/cdm/patients/managing...
Next steps after your diagnosis: finding information and support
Consumer health information for people with a disease or chronic condition on how to obtain reliable treatment information by the Agency for Healthcare Research and Quality (USA).
url: www.ahrq.gov/consumer/diaginfo.htm
Patient Self-Management - Chronic Disease Care
Overview of research and publications showing evidence patient self-management interventions lead to improved health status, increased patient satisfaction and reductions in hospital and emergency room costs, listed by the Californian Health Care Foundation.
url: www.chcf.org/topics/chronicdisease/index.cfm?subto...
Poem, Pain Management, Chronic Illness
Poem about coping with pain using relaxation and imagery.
url: www.lehman.cuny.edu/faculty/jfleitas/bandaides/pai...
Preventing Chronic Disease: Public Health Research, Practice and Policy
A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
url: www.cdc.gov/pcd/
Preventing Disability in the Elderly With Chronic Disease
Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
url: www.ahcpr.gov/research/elderdis.htm
Report of the Working Group on Long-Term Care
US Department of Labor, Advisory Council Report to recommend policy changes and education on broad scope of findings.
url: www.dol.gov/ebsa/publications/report2.htm
Stanford Self-Management Programs
Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.
url: patienteducation.stanford.edu/programs/
Ten Resolutions
A psychologist offers strategies for dealing with painful illnesses.
url: www.tenresolutions.org
Ten Steps for Coping with a Chronic Condition
Harvard Health Publication Letter. Patient oriented advice.
url: www.health.harvard.edu/newsweek/10_steps_for_copin...
Yoga For Chronic Illness
Article explains how yoga helps to maintain and restore health by stretching and breathing.
url: www.cancerlinks.com/Yoga/illness.html
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