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A-Z Directory of Cystic Fibrosis Resources
Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
url: www.cellscience.com/CFmain.html
The Breathing Room
Guidance about the art of living with cystic fibrosis.
url: www.thebreathingroom.org
CF Prescriber
Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
url: www.cfprescriber.com/
Cindy's Friends
Information about the disease, progress being made towards a cure, and fundraising efforts in Tennessee.
url: www.cindys-friends.com
Clayton Bates Cystic Fibrosis Support Site
For family, friends, and other supporters to find out about the disease and offer support for Clayton.
url: www.claytonbates.org
Cystic Fibrosis Health FactSheet
Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
url: hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/Cysti...
Cystic Fibrosis Links
Cystic Fibrosis Links and Information
url: www.goodgulf.com/cystic.html
Cystic Fibrosis Medicine
Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
url: www.cysticfibrosismedicine.com
Cystic Fibrosis Resource Center
Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
url: www.healingwell.com/cysticfibrosis/
Cystic Fibrosis Resource Centre
A source of information for cystic fibrosis patients, parents, doctors and other carers.
url: www.cysticfibrosis.co.uk
Cystic Fibrosis: Therapeutic Options for Co-management
Illustrated article details causes, symptoms, treatment, prognosis, and other effected systems. [PDF]
url: www.thorne.com/media/cysticfibrosis.pdf
Cystic Fibrosis Western Australia
Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
url: www.cysticfibrosis.org.au
CysticFibrosis.com
Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
url: cysticfibrosis.com/
Home Page-Harminder
Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might devolop if the theory behind this article prove true.
url: student.biology.arizona.edu/honors96/group9/Page2....
Irri Shark's Page
About the '65 roses' story.
url: hometown.aol.com/irrishark/page/index.htm
Jewish Genetic Diseases - Cystic Fibrosis
Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
url: www.mazornet.com/genetics/cystic_fibrosis.asp
Medline Plus - Cystic Fibrosis
A comprehensive source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
url: www.nlm.nih.gov/medlineplus/cysticfibrosis.html
MyCysticFibrosis.com
Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
url: www.mycysticfibrosis.com
Pulmozyme.com
Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc.
url: www.pulmozyme.com
The Spirit of Lo - Inspirational Book
Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
url: www.spiritoflo.com
AltaVista
url: www.altavista.com/web/results?q=%22cystic%2bfibros...
A9
url: a9.com/%22cystic%2bfibrosis%22
AOL
url: search.aol.com/aolcom/search?query=%22cystic%2bfib...
Ask
url: search.ask.com/web?q=%22cystic%2bfibrosis%22
Clusty
url: clusty.com/search?query=%22cystic%2bfibrosis%22
Gigablast
url: gigablast.com/search?q=%22cystic%2bfibrosis%22
Google
url: www.google.com/search?num=10&query=%22cystic%2...
Lycos
url: search.lycos.com/?query=%22cystic%2bfibrosis%22
MSN
url: search.msn.com/results.aspx?q=%22cystic%2bfibrosis...
WiseNut
url: wisenut.com/search/query.dll?q=%22cystic%2bfibrosi...
Yahoo
url: search.yahoo.com/bin/search?p=%22cystic%2bfibrosis...
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