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Categories Cystic Fibrosis@ [48] Down Syndrome@ [22]  Web Sites report abuse/spam | url: report-abuse.dmoz.org/?cat=Health/Conditions_and_D... Alpha1 Antitrypsine Deficiency One man's perspective and journey with A1AD and a list of links and other resources from the internet. url: home.att.net/~a1ad/intro.htm Ashly's Skeletal Dysplasia A mom describes her daughters disorder which is thought to be a metabolic disease similar to mucopolysachharisdoses. Also links to other related sites. url: www.angelfire.com/or2/ashlysworldofwonders/about.h... Caleb's Courage A baby's fight with MPS I, Hurler Syndrome. Information on the disease and links to other children fighting disease. url: www.geocities.com/calebwaddell Joy's Page Personal account about a daughter having Opitc Nerve Hypoplasia, Septo-Optic Dysplasia and had either a Congenital stroke or has schizencephaly. url: www.lebaronfamily.com Maddy's Page The story of Madison Wigglesworth who has hurler syndrome. Includes photo album and links to informative sites. url: members.aol.com/kymwig MCAD Angel Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection. url: www.mcadangel.com Mowat-Wilson Discussion site for mowat-wilson syndrome. Includes a links page, photos, a community page and a discussion area. url: www.mowatwilson.org Robert Kenneth Picklesimer Born with Jeune Syndrome or Asphyxiating Thoracic Dystrophy in Louisville Kentucky. He underwent corrective surgery in San Antonio Texas, called the Titanium Rib Project. url: www.picklesimers.com/robert_kenneth.html Story of Robert Purkis A small boy's health problems, possibly Leigh's Syndrome, and how his parents have helped him improve his quality of life. url: swpurkis.pwp.blueyonder.co.uk/index.html Taryn's World: About Switches Personal page for kids and parents about genetic disorders, especially mannosidosis. url: www.tarynsworld.org/taryn/switches.htm Unlucky Mutant The author request help from geneticists, neuroscientists, pharmaceuticals or biotech companies. url: unluckymutant.no.sapo.pt XXXXY Syndrome Information on this rare chromosomal abnormality. url: www.xxxxysyndrome.com AltaVista url: www.altavista.com/web/results?q=%22personal%2bpage... A9 url: a9.com/%22personal%2bpages%22 AOL url: search.aol.com/aolcom/search?query=%22personal%2bp... Clusty url: clusty.com/search?query=%22personal%2bpages%22 Gigablast url: gigablast.com/search?q=%22personal%2bpages%22 Google url: www.google.com/search?num=10&query=%22personal... Lycos url: search.lycos.com/?query=%22personal%2bpages%22 MSN url: search.msn.com/results.aspx?q=%22personal%2bpages%... Teoma url: s.teoma.com/search?q=%22personal%2bpages%22 WiseNut url: wisenut.com/search/query.dll?q=%22personal%2bpages... Yahoo url: search.yahoo.com/bin/search?p=%22personal%2bpages%... edit url: editors.dmoz.org/editors/editcat.cgi?cat=Health/Co...  More Search All the Web - AltaVista - Gigablast - Google USENET - Google - Teoma - Yahoo

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