About Andrea‚Äôs Disease
Personal history of a girl in France. [English/French]
Atlas of Genetics and Cytogenetics in Oncology and Haematology
Description and links.
Foundation for Ichthyosis and Related Skin Types
Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis.
Hair Shaft Defects - Trichothiodystrophy
Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.
Jeans for Genes Day
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.
National Library of Medicine
Trichothiodystrophy, the synonyms, a summary and a list of the major features.
A Parent's Account of Trichoththiodystrophy
A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.
Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani
A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers. [PDF]
Yahoo! Groups : Trichothiodystrophy
Uniting parents and individals who's loved ones have the Trichothiodystrophy Syndrome
Yahoo! Groups : Trichothiodystrophy Family Contact
For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.
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