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About Andrea’s Disease
Personal history of a girl in France. [English/French]
url: monsite.wanadoo.fr/andrea2610/
Atlas of Genetics and Cytogenetics in Oncology and Haematology
Description and links.
url: www.infobiogen.fr/services/chromcancer/Kprones/Tri...
Foundation for Ichthyosis and Related Skin Types
Provides support, information, education and advocacy for individuals and families affected by ichthyosis. F.I.R.S.T. supports research into causes, treatments and a cure for ichthyosis.
url: www.scalyskin.org/content.cfm?ContentID=105&Co...
Hair Shaft Defects - Trichothiodystrophy
Hair and hair disease information with answers to common questions, treatment details, book reviews, web links.
url: www.keratin.com/ag/ag013.shtml
Jeans for Genes Day
Australian member of parliament, Maria Vamvakinou, announces a day to promote awareness of genetic disorders.
url: www.mariavamvakinou.com/wmview.php?ArtID=54
National Library of Medicine
Trichothiodystrophy, the synonyms, a summary and a list of the major features.
url: www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=601675
A Parent's Account of Trichoththiodystrophy
A personal account from a family in Australia about Sammy-Joe, who was born with this disorder. Contains an online journal and links to related sites.
url: www.vp-it.com.au/sammyjoe/
Trichothiodystrophy - Doctor Alfredo Rossi and Doctor C. Cantisani
A short technical document discussing the condition. Contains enlarged photographs of damaged hair shafts, and references to other medical papers. [PDF]
url: www.orpha.net/data/patho/GB/uk-trichothiodystrophy...
Yahoo! Groups : Trichothiodystrophy
Uniting parents and individals who's loved ones have the Trichothiodystrophy Syndrome
url: health.groups.yahoo.com/group/Trichothiodystrophy/
Yahoo! Groups : Trichothiodystrophy Family Contact
For families as well as patients who are looking for information, contact and support for people living and dealing with trichothiodystrophy.
url: health.groups.yahoo.com/group/TTD-support/
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