Gorham's Disease or Massive Osteolysis
Supporting those affected by this rare condition. From the AFAS Association. Available in English, French, and Spanish.
Jake Moore Memorial Site
Personal page about a young man who had vanishing bone disease. Offers a support forum.
Lymphangiomatosis and Gorham's Vanishing Bone Disease
Provides general information about the condition, a personal account, including pictures and x-rays. Also offers a message board.
The Lymphangiomatosis Foundation
Organization working on finding a cure for lymphangiomatosis and Gorham's disease through research, fundraising, and education.
Management of a Fracture in a Known Case of Gorham's Vanishing Bone Disease
Provides an introduction, case presentation, discussion and conclusion. Aimed at medical professionals.
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