Becker Muscular Dystrophy Information Exchange
Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
DMD Information and Resources for Teachers
Information for teachers of children with Duchenne Muscular Dystrophy (DMD).
Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
Duchenne/Becker Muscular Dystrophy
Includes key facts and animated slide shows of causes, diagnosis and treatment.
Provides links to medical and non-medical organizations and people with Duchennes problems.
FSH-MD Support Group
Provides support for those with Facio Scapulo Humeral and their carers.
General Practice Notebook - Duchenne muscular dystrophy
A Guide for Parents
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
Living For Today, Preparing For Tomorrow
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
MDA Ride For Life
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
Muscular Dystrophy Campaign
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
National Registry of Myotonic Dystrophy and FSHD Patients and Family Members
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
NINDS Muscular Dystrophy Information Page
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy
Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians. [PDF]
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