Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
Families of SMA (Spinal Muscular Atrophy)
International support group and resource center for this disease, includes current research.
Families of Spinal Muscular Atrophy Canada
Canadian charity supports research into a cure for SMA.
Web site promoting public awareness for spinal muscular atrophy.
GeneClinics SMA Information Page
Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
Ilsa's SMA Resources
A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
Our SMA Angels
Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
The Sean W. Venezia Foundation
Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
SMA Angels Support Site
A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
SMA2 Ian Paul
I am two years old and I have SMA2.
SMA Support Inc.
A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
Spinal Muscular Atrophy Foundation
Information on SMA, and the latest updates in research, treatment and funding.
Theo's Story with SMA
A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
Washington University of St. Louis: Neuromuscular
Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
All the Web -
Google USENET -