Children's Hospital Medical Center of Cincinnati Tuberous Sclerosis Program
Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
Personal story of a child who has the condition, Tuberous Sclerosis. Contains links and photos.
Information and support for persons affected by Tuberous Sclerosis Complex in Canada.
Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
Kolten's Tuberous Sclerosis Page
Describes his seizures and surgery.
Matthew's Site for Tuberous Sclerosis Awareness
Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
National Library of Medicine
A list of synonyms, a summary and major features of tuberous sclerosis.
NORD: Tuberous Sclerosis
Offers alternative names, a general discussion and further resources.
Pediatric Oncall- Tuberous Sclerosis
Offers commonly asked questions about this disease.
Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Tuberous Sclerosis - Lisa's Site
An incurable genetic condition that causes tumors to grow in various places in the body.
Tuberous Sclerosis Alliance
US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
Tuberous Sclerosis Association
UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
Tuberous Sclerosis Fact Sheet
Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
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