Rett Syndrome Research Foundation
Promotes biomedical research for the treatment of Rett Syndrome, often misdiagnosed as Autism and Hypotonia. Offers detailed information, links, studies, support groups, and information on the Rett Syndrome gene MECP2 recently discovered.
International Rett Syndrome Association (IREA)
The mission of the IRSA is: to support and encourage medical research to determine the cause and find a cure for Rett syndrome, to increase public awareness of Rett syndrome, and to provide informational and emotional support to families of children with Rett syndrome.
National Institutes of Health
Information in Rett Syndrome, treatment and prognosis.
Rett Syndrome forum and online support group sharing personal stories and information.
One family's experience with Rett Syndrome, Applied Behavioral Analysis and Discrete Trial Teaching.
The Autism Research Institute distributes an information packet on Rett Syndrome.
Rett Syndrome Association of Ireland
A support group for the victims of RS and their families. Read about the organization and the disorder.
Rett Syndrome Association (UK)
The Rett Syndrome Association UK, a registered charity, is dedicated to the support of girls and women, together with their families and carers, suffering from this complex neurological disorder, which affects them throughout their lives. Sufferers are profoundly and multiply disabled.
Rett Syndrome Fact Sheet
An in depth look at this syndrome prepared by the National Institute of Neurological Disorders and Stroke (NINDS).
Rett Syndrome Resources
Facts and various information containing links.
The Sarah Varon Foundation for Rett Research
A family dedicated to finding a cure for Rett Sydrome. Find announcements, photos, and an overview of the disease.
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