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 Headlines:

 
 

The Medical Website Directory

 Web Sites
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CajunHeart
Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
url: cajunheart.tripod.com

Friedreich Ataxia Research Association
Summarises recent progress in ataxia research and the search for better treatment.
url: www.fara.org.au/

Friedreich's Ataxia and I
The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs.
url: www.ohbother.co.uk/25591.html

Friedreich's Ataxia Fact Sheet
A comprehensive resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
url: www.ninds.nih.gov/disorders/friedreichs_ataxia/det...

Friedreich's Ataxia Parents Group
With advice for new parents on the the disease, and on how the parent might better cope emotionally.
url: www.fortnet.org/fapg/

Friedreich's Ataxia Research Alliance
Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.
url: www.faresearchalliance.org/

Friedreichs Ataxia Society Ireland
Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
url: www.ataxia.ie/

GeneClinics: Friedreich Ataxia
An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
url: www.geneclinics.org/profiles/friedreich/

Matt's Mansion
Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
url: www.matthewlaw.co.uk/

NORD: Friedreich's Ataxia
Offers the synonyms, a general discussion and further resources.
url: www.rarediseases.org/search/rdbdetail_abstract.htm...

Not Going Quietly
Comprehensive personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
url: www.notgoingquietly.com

Swiss Association of Friedreich Ataxia
Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
url: www.achaf.org/

Patient loses right-to-food fight
The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
url: news.bbc.co.uk/2/hi/health/5257252.stm

AltaVista

url: www.altavista.com/web/results?q=%22friedreich%27s%...

A9

url: a9.com/%22friedreich%27s%2bataxia%22

AOL

url: search.aol.com/aolcom/search?query=%22friedreich%2...

Ask

url: search.ask.com/web?q=%22friedreich%27s%2bataxia%22

Clusty

url: clusty.com/search?query=%22friedreich%27s%2bataxia...

Gigablast

url: gigablast.com/search?q=%22friedreich%27s%2bataxia%...

Google

url: www.google.com/search?num=10&query=%22friedrei...

Lycos

url: search.lycos.com/?query=%22friedreich%27s%2bataxia...

MSN

url: search.msn.com/results.aspx?q=%22friedreich%27s%2b...

WiseNut

url: wisenut.com/search/query.dll?q=%22friedreich%27s%2...

Yahoo

url: search.yahoo.com/bin/search?p=%22friedreich%27s%2b...

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