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The Doctors Lounge - Endocrinology Answers

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Forum Name: Endocrinology Topics

Question: Hypercortisolism but not Cushings?


lalique - Sat Jun 02, 2007 11:20 pm

My daughter is 20, with no past surgeries, taking only Lutera birth control pills to keep her having periods. Without them, they stop. Recent visit with our famliy dr. brought up several symptoms that were indicative of Cushings, ie, weight gain, moon face, buffalo hump, irregular menstrual, moodiness, Acne, fatty neck, hyperpigmentation around neck, on knuckes and underarms and stretch marks that began around age 11. This child did have Spondylosis and spondolysthesis that fused with a year of being braced at age 11 also. The doctor ordered a 24 hour free cortisol test...result was 112. ACTH level was 87. Referred to endocrinologist who ordered a three day dex suppresion test. Day one, 81. 5, at the end of day 3, it was 12. Abdominal CT scan, lung base and Brain/Pituitary MRI were unremarkable. The endocrinologist said she has hypercortisolism but not Cushings and says there is nothing that can be done until a tumor begins to show. Is that right? I wonder if he has done all the tests he could to pin this down better. Are there other possible causes we should be looking for? Sitting and waiting for it to get worse while the high cortisol levels could cause other problems just doesn't seem to be the right thing to do.

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