Hello ... I'm a healthy 30 year old female, I've had a swollen lymph node for 10 months, then a second node swelled up overnight in Jan. I also ran a fever of above 100 degrees for 16 days and started having night sweats (I've posted on here before).
Saw an ENT and oncologist, they did a fine needle biopsy which was inconclusive, then a general biopsy whcih showed negative for Hodgkins, still waiting for the non-Hodgkins results.
My LDH is now 1200 and my ESR is 45, liver functions are slightly elevated. Both have been increasing in the last month. All blood cultures are negative, and a round of antibiotics did nothing. PET/CT scan showed a slightly enlarged spleen and liver, three "active" nodes in my neck, and a small amount of uptake in my bone.
There were definetly abnormal lymphocites in the biopsy, and my oncologist was very surprised when the Hodgkins came back negative. He was sure that was what it was!
** Question1: ** Should I push for a second opinion on the biopsy? I'm at UPenn, and I am very confident in them, but I also understand it can be a tricky thing to do.
** Question 2: ** If non-Hodgkins comes back negative (keep your fingers crossed!) where do i go from there? Auto immune disorder? Infectious disease?
** Question3: ** Is it normal for a lymph node to swell substnatially after a biopsy is done? My ENT removed am "M&M sized piece" of the node, and 8 days later, the node is HUGE. Much larger than before.
My Docs agree "something" is wrong, they just can't put there finger on it. Who might be a good specialist to see next?
Thank you ...