I was recently diagnosed w/ FSGS. I currently weigh about 40 lbs. more than my normal weight. I just started steroid therapy this week, and I take Lasix and also meds for thyroid, cholesterol and high blood pressure.
My main concern is the swelling of my scrotum. The swelling of the feet, ankles, calves, knees, thighs, hips, and stomach I can deal with. But my scrotum has swollen to the size of a large grapefruit. I can't walk normally, I can't sit down for any extended period of time, I can't sleep comfortably. It presents all kinds of problems.
My doctor doesn't seem overly concerned about my scrotum. He said all the weight will come off gradually, maybe 2-3 months (I gained it in about 1 week) and that my scrotum will progress at the same rate. I don't know what I'm going to do if that's the case. I can't go to work like this. I went out this morning and bought an XL jock strap, but the problem is the waist is way too wide, and the part that actually holds your sack is way too small. I'm thinking about asking my friend Sally to take two of them and sew it into one super jock strap.
All kidding aside, though, I would appreciate any suggestions, advice, or even just related experiences from anyone who has gone through something like this before. Thank you. God bless.