I am writing this post to see what kind of help I can get. my little brother who is a little over 2 years old is slowly withering away to almost nothing. I can't stand to see my father so distrought and helpless. It hurts me to my core. I am 24, my father decided to start a new family.
At birth my brother was mishandled and yellow
jaundice set in and was overlooked till the point that his billy ruben levels reached possible brain damage. A year of systematic problems had become massively worse. He was, at that point diagnosed with kernicterus due to the yellow
jaundice. Here is where the problem lies. The doctors cannot not help him. He continues to
vomit on a daily basis sometimes 2-3 times a day. The doctors have put him on medication to ease the acidic affects of
vomiting so much. The doctors have said his esophogus is permanantly damaged already. This little boy (who is the cutest thing I have ever seen and who is my inspiration to have children someday) is a fighter. His disabilities make it hard for his body to respond due to the brain damage[although his intelligence was not affected]. So he cannot speak yet or walk. He finds a way to do and go where do what he has to.
Because of the
vomitting they put him on a special strictly whey diet(400 calories per serving). Since then he has contiued to drop weight. Then about six months ago they said we had to put him on a feeding tube or else he would die. So my parents did. He continued to
vomit on an almost daily basis barely keeping down anything.
He wants to eat... he tries to eat (he is hungry). It is so sad to see him in this situation it brings tears to my eyes typing this.
The doctors are not helping him with the
vomiting. The anti-acids are not making things much better as you can noticeably see
vomiting is still very painfull for him. Since then he has had to have surgery to put a permanant feeding tube directly throught his gut to his stomach to prevent him from
vomiting up the feeding tube. His immune system is getting worse by the week. The incision where the tube was inserted is constantly getting infected due to his low immune system. He is still dropping wieght although very slowly...he should be putting on weight. He is 30 months and weighs 23 lbs.
I need help getting him to stop
vomitting (which is causing him to lose weight). The doctors are go crazy over it and my little brother, and my father's little boy is dying. I am pleading for help from someone... anyone.
The only other thing I can tell you is that a lot of the time just before he
vomits he looks like he is in excrutiating
pain and then projectile!
vomits...not a normal episode that you would think...I have seen it go 3 feet once and he is so tiny.
I am asking anyone with any kind of advise wether it be a doctor or someone who may have gone through the same thing to please contact me by reply to this post or by email at
tiger5226@hotmail.com
