You've certainly had to cope with a lot. At the very basic level, pain is an indication of something wrong somewhere. You've had evaluations that have not disclosed a specific reason, so you're absolutely correct in pursuing further medical evaluation. Your point about AS is actually a good one; your symptoms are consistent with those of AS, although there are other diagnoses that are also possible. Seeing a rheumatologist is the best next step. I always recommend that a person maintain a daily record of their symptoms and related issues, such as feeling less pain while ill. Record the symptom, when it occurs, how long it lasts, what you were doing when it started, what helped alleviate it, if anything, and any other data that seems significant to you. Take your record with you when you see your physician(s), as it can be invaluable to them in evaluating a diagnostic pattern and when any medications might be most effectively given. It will also track any improvement or deterioration. I hope this is helpful to you, and I wish you the best of luck in finding out the basis of your health problem.
Faye, RN, MSW