Unfortunately you sometimes have to get worse in order to get better. In other words, the symptoms sometimes begin in a vague way but later on progress to something more significant and identifiable. I can't say whether or not you have MS. And, even though they told you they would need the spinal tap to be 100% sure, this really isn't necessarily the case.
This disease can be in early stages and not show up - I'm sure this is the reason for the year wait for retesting. Things could progress far enough that the testing could pick up the problem. Meanwhile try not to worry too much about these things. Continue to see your health care providers as you try to discover the cause of your symptoms. You are the best one to know your own body, what is normal, what is not. Good luck.
The answers in online forums are for information only and are not intended to substitute for medical advice and care. Please see your personal health care provider for further evaluation of your individual case.
Debbie Miller, RN