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Forum Name: Renal Failure

Question: Renal Tubular Acidosis - Follow up Visits


 TGR - Thu Jan 08, 2009 9:08 pm

Dear Sir/Ma'am,

Our 1 year Son was diagnosed with Renal Tubular Acidosis and is now on the Medication Cytra-2 Sol Cypress.
Since reading up on this disease and realising how serious this is. We wondered how often should we follow up with a Nephrologist?
He was diagnosed in November 2008 and the first appointment we can get is February 16 2009.
This would be his first appointment since his diagnosis. Is this too far off?

Most kindest Regards
Extremely stressed and concerned parents
 John Kenyon, CNA - Sat Mar 21, 2009 10:18 pm

User avatar Hello --

This is a very worrisome and stressful thing for parents to deal with, but it should be placed into its proper perspective, which may help to reduce the amount of stress on you both. It seems your son is receiving the appropriate treatment for the problem, and a 90 day interval between start of medical therapy and the first followup seems about right, assuming there are no sudden, significant changes such as decreased level of consciousness or orientation on the part of your son. So long as he seems to be behaving normally and is taking his medication without incident, three months would seem to be the right length of time to be able to evaluate the effectiveness of the medication. Of course if there are any sudden, untoward changes as outlined above, you should let his nephrologist know at once. Otherwise this is a treatable disease and while untreated it is dangerous, it seems everything is being done according to proper medical protocol.

I hope this helps ease your minds some. My best to you both and to your son. Please follow up with us here as needed.

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