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Question: Multiple Sclerosis symptoms?
| theone
- Tue Jan 16, 2007 6:56 pm |
I'm a 21 years-old female. I had Uveitis at a very young age with an attack of photophobia starting at 10 days old. At age around 6-7 my mom started noticing I had problems hearing and eventually I was diagnosed with progressive sensorineural hearing loss. Later on I was told it had to be a neurodegenerative disorder but doctors couldn't point to which. I am also very short [4'10]. At age 13 approximately I developed a tremor which comes and goes and is worse on movement [such as polishing my nails or writing and typing] I have read intention tremors indicate damage/degeneration to the cerebellum.
Since I was 15 and moved to the US I haven't had the resources to seek medical attention other than basic medical care. Through these years the only other symptoms I developed were more marked clumsiness, weakness and loss of balance but it wasn't so bad as to disable me. When I turned 20 my health started to decline and by mid 2006 I was diagnosed with Diabetes [unsure on which type] and started on glyburide and then metformin. At about the same time I developed a very sharp pain in my left ribcage which is still undiagnosed, my left ribcage sticks out.
2 months after being diagnosed with Diabetes I was diagnosed with peripheral neuropathy. I saw a doctor about it and he said he doubts the neuropathy is related to Diabetes because of the wide range of neuro symptoms I have and that he believes it has to do with the spinal cord / brain.
I know Multiple Sclerosis is not common in children but it happens and from what I have read it is usually milder than adult MS. Also I know hearing loss is uncommon but it is also possible and it does happen in MS as well as Uveitis.
I appreciate any iput.
AJ
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| mtstreet
- Fri Jan 19, 2007 11:41 pm |
Hi there,
I'm very sorry to hear about all your problems. Have any of your doctors ever been suspicious that you might have Turner's Syndrome? I may be totally wrong but some of the symptoms you describe - being very short, Diabetes, hearing loss- are all problems that can come about with TS. (Well, being short isn't that much of a problem.) : ) You might want to do an internet search on it.
Take good care.
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| Dr. Chan Lowe
- Sat Jan 20, 2007 12:25 am |
 HI theone,
mtstreet mentions an interesting thought. It is possible that Turner syndrome may have a component in this. The American Academy of Pediatrics now recommends that all girls who are shorter the the "norms" be tested for Turner syndrome.
Generally Turner's does not have major impacts on health, but can have some important effects that need to be followed.
Additionally, MS can occur in the teenage years. Typically, MS episodes are described as being intermittent, where they resolve in between-although this is not the case. A formal diagnosis relies on having two independent neurological events (I.
e. two different locations in the brain/spinal cord) separated by time. The rest of the criteria get more involved. Typically MS is not thought to cause symptoms outside the nervous system; however, we really don't have a good understanding of what causes MS and it is thought to possibly be an antibody mediated thing. Where one autoantibody is, often other follow allowing for other autoimmune diseases such as Diabetes to occur.
I would strongly recommend that you be evaluated by a neurologist. Sometimes a direct examination can pick up information that was not apparent in daily living, providing the key to diagnosis. I would also suggest getting a karyotype done to evaluate for Turner Syndrome.
You are correct that a cerebellar lesion can cause an intention tremor. There are also other causes that should be explored.
Keep us updated. Hope this helps.
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| theone
- Fri Jan 26, 2007 7:08 pm |
Yeah, actually that was one of the first things they thought I had and I had a test done for it that came back negative, also for Alport Syndrome [I think that's the name]. I am taking a test for autoimmune gluten sensitivity, I know it often causes neurological problems but I don't know about hearing loss and it's also associated with autoimmune diseases like Diabetes and thyroid [I tested positive for anti thyroid antibodies but my thyroid still works well] and with short stature and also I have stomach problems so I want to rule that out.
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| CelticLabyrinth
- Thu Feb 01, 2007 4:47 am |
http://www.
hchdonline.
com/
I found that link for a public hospital in houston. They usually provide care regardless of ability to pay.
Best wishes
-Nicole
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