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Forum Name: Miscellaneous Cancer Topics

Question: Pheochromocytoma


 judywbates - Fri Apr 15, 2005 5:54 pm

I have a cousin who had a tumor removed from her aorta several years ago - she was told it was benign. It has reoccurred and she has been told this time that it's malignant, extremely rare, and called Pheochromocytoma. I can't find anything regarding this. Her oncologist said it was linked to an individual's DNA. Can anyone tell me anywhere to go for more infornation. Thank you.
 Dr. Tamer Fouad - Mon Apr 18, 2005 3:56 pm

User avatar judywbates,
You can find info about this rare disease on this very site by clicking on the following link: Pheochromocytoma.
You may find more information elsewhere on the internet. I would advise an isotopic scan as part of her workup to exclude extramedullary disease. If it turns out that there is no evidence of metastasis and no symptoms then she should be put under follow up.

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