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Date of last update: 10/18/2017.

Forum Name: Dermatology Topics

Question: Latent Steven Johnson syndrome and rash

 bluetopaz - Wed Apr 08, 2009 8:25 am

Hi, I am 45y female. Some fifteen years ago I had Steven Johnson syndrome. The rash, which covered most of my body, took another few months to clear completely. Now I have had a few allergic reactions, one unknown (suspect) cleaning agent, and the other glue of surgical pad. Both had red, raised skin, but with clear borders, maybe one-third palm in size. After a few days the reddening subsided, leaving the skin brownish and rough. One eventually cleared, one is still on brown-stage. Can this be somehow related to the SJS I had, even though they did not explode all over the body? Another question, I have been in weak health ever since (15years), with unspecified and mystifying health complications, could this be related to the SJS? I am running from doctor to doctor doing all kinds of tests.. Any help would be very much appreciated!
 John Kenyon, CNA - Sat Apr 11, 2009 7:57 pm

User avatar Hello--

What you're describing sounds rather like erythema multiforme, which is associated with SJS. The lesions you describe sound a lot like the less serious, chronic form of EM, but should be examines at least. Minimizing ingestion of benzoates (which occur naturally in certain fruits as well as an additive in other foods) and alcohol will usually cause the lesions to resolve. EM is often a sequel to SJS, and at least it doesn't sound like you have the more serious type, erythema multiforme major. Since your initial SJS episode was rather extensive yet occurred later in life so as to be less dangerous, this is probably as serious as it's likely to get, but it might require medical management if it's not self-limiting, which it usually is. The treatment then would be steroids.

I hope this is helpful to you. Please follow up with us as needed.

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