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Date of last update: 10/15/2017.

Forum Name: Gastroenterology Topics

Question: NF1 w/ Chronic Diahrrea, Windness, Chest Pain, Fatigue

 ComplexScience - Sat Dec 08, 2007 2:40 pm

Can somebody please help. My doctors are getting nowhere and I am at wits end. Does anybody have any ideas that I can pass along? There is a family histroy of heart disease and that is about it.

Age: 34 Height: 5 ft 6 in Weight: 160 lbs

Benign Prostatic Hyperplasia
Bilateral Optic Glioma (astrocytoma)
Horner Syndrome
Neurofibromatosis Type 1
Pterygium (left eye)

Bitemporal Craniotomy with Optic Nerve Decompression
Radiation Therapy
Strabismus Surgery (Left)
Removal of Right Axillary Neurofibroma
Removal of Plexiform Neuroma from Right Serratus Anterior
Removal of Right Medial Collateral Ligament
Laparoscopic Cholecystectomy

Chest Pain
Numbness in right arm causing tingling in 3 fingers
Mood Swings (short tempered)
Diarrhea (yellowish-orange with occasional blood)
Headaches (normally upon waking up)
Loss of appetite
Loss of weight ( ± 20lbs over 3 months)Occasional blood in stool
Nausea (dry heaves)
Windness and rapid heart beat after walking short distance
 Dr. Chan Lowe - Fri Feb 01, 2008 7:19 pm

User avatar Hello ComplexScience,

It is difficult to tie all your symptoms together. The tingling feelings and headaches are more likely to be from a neurological issue. Perhaps you have a new neurofibroma that has formed causing some compression of a nerve. Seeing your neurologist about this will be the most helpful.

The diarrhea, weight loss, and shortness of breath may all be due to some inflammation of the GI tract, such as with an inflammatory bowel disease. The inflammation of the stomach may be causing the diarrhea due to poor absorption of fat and other compounds. The inflammation can also lead to bleeding. Enough bleeding leads to anemia which can cause your shortness of breath. It can also lead to headaches in some cases.

I would recommend you see a GI specialist and perhaps have a colonoscopy done. I would also recommend you be evaluated for anemia.

Best wishes.

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