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Date of last update: 10/12/2017.

Forum Name: Hematology Topics

Question: polycythemia vera

 junglewolf - Thu Feb 17, 2005 7:50 pm

I am a 45 year old male who was just diagnosed with polycythemia vera.The doctor told me very little other than I need to have phlebotomies done.He said I would live a normal life expectancy....this contradicts everything I have read on the subject, which is quite a lot.What is the life expectancy of someone with this disease.My HCT is 57.8%.Red cell mass is 35.6% from ideal.Plasma volume is -14.9% from ideal.Any help would be greatly appreciated.Thanks
 fishtales - Tue Oct 25, 2005 10:13 pm

I am a 40 year old man with pv. I have not met anyone or talked to anyone who has this disease. I was diagnosed 2 years ago and would really like to talk to someone who goes through what i go through on a daily basis, to see and to discuss this horrible disease. If there is anyone reading this with pv, please reply.
 Quxiotic - Thu Feb 23, 2006 10:28 am

My significant other is a 44 year old male diagnosed with PV. Is currently on Hydrea 1000mg along with weekly phlebotomies. Still in testing phase. Doctor not telling us much. Anyone with andy advise? What quetions should weI ask the doctor?

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