Doctors Lounge - Neurology Answers
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Forum Name: Neurology Topics
Question: Undiagnosed Symptoms
|Poda - Tue Jul 31, 2007 2:53 am||
I've posted various times over the past few months, but I want to consolidate it here. Basically, I'm just looking for any suggestions of what to look into next. Here are my symptoms:
The onset was sudden, starting about 2 years ago. The symptoms consist of lower back pain, buttock pain, burning, tingling on the left side, rectal pain/pressure, pain along the right and underside of urethra, right scrotal pain, right hip pain, some numbness/sensory changes near the urethral/top of scrotal area, and problems urinating and with bowel movements.
I've had a large urological workup, and it continues to be non-revealing. I've had cystoscopy, pelvic ct, many urine studies, retrograde pyelogram, ivp, scrotal ultrasound, and tried various antibiotics. I've also had 2 colonoscopies a lot of blood work. Nothing is revealing. So, I'm starting to consider another possible cause. I have had an MRI from T1 to S5, but that isn't revealing and a back doctor told me it doesn't show any sign of a problem that would cause my symptoms. The first time I went to a neurologist, he said go back to the urologist. So, I did, and they repeated some stuff and did a cystoscopy. Still nothing. The 2nd time, they just sort of blew me off. So, I am holding off again until I can figure out a good plan. My current thoughts are to consider a neurologist and rheumatologist.
I was wondering if the doctors have any advice on where to look next? Some things I want to consider are nerve problems, like the pudendal nerve, or maybe some type of pelvic floor hernia or something to explain the problems using the bathroom. It's getting frustrating.
|Debbie Miller, RN - Tue Jul 31, 2007 11:40 am||
There is no question this would be frustrating. Either of the options you mention would be worth pursuing.
Since you have seen a neurologist who referred you for further workup, it would certainly be appropriate to return now with the results so he/she can continue to search for the problem. That would probably be my next step. I wish we could give you something more concrete here but as you are learning, sometimes diagnosis is a process of elimination until something definite becomes apparent after ruling out everything else.
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