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Date of last update: 10/04/2017.
Forum Name: Neurology Topics
|medfreaks09 - Sun Dec 02, 2007 4:24 pm||
Hi- we are two high school students that are interested in becoming doctors. In our health class we are doing a project on Congentital Insensitivity to Pain with Anhidrosis (CIPA). We would like to know where people with this disease can go to find help. Preferably within the Tri-State area.
Thank you so much for all your help!
|Dr. Chan Lowe - Thu Dec 06, 2007 11:49 pm||
CIPA is a fascinating disease. It is characterized by inability to feel pain, heat or cold and by association inability to sweat.
It is an extremely rare disease. There are probably less than 500 reported cases in the entire world. There is a large cluster in Japan (>300) and probably about 70 in the USA at this point.
There is no specific treatment for CIPA and, as such, I am not aware of any specific treatment centers. I did a web search and could not locate any, although there are several labs studying the disease.
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