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Date of last update: 8/21/2017.

Forum Name: Rheumatology Topics

Question: Hard neck lumps and fibromyalgia

 marina42 - Mon Jun 29, 2009 11:32 am

Dear Dr.,

I am a 33-year-old woman (5'4, 120 lbs) recently diagnosed with fibromyalgia after exhaustive testing. My pain has decreased and my sleep has improved with daily yoga and diet modification (I gained 7 lbs back).

But I still have several hard lumps in my neck that cause great discomfort. Three lumps are where lymph nodes would be above the clavicle and under the jaw; two are right on the SCM; four are along the trapezius, on the back of the neck. Some are as small as 1 cm; some are much larger.

An ultrasound, chest X-ray, a CT and a PET/CT, all in the last seven months, have shown no malignancy -- and no significant lymphadenopathy. A needle biopsy failed to show what the lumps are. My doctors say "reactive nodes" (for seven months?) or "scar tissue" and "don't worry about it." All CBCs are normal; no Lyme disease, either.

The lumps themselves don't hurt, but they make everything around them hurt. I also have constant rock-hard swellings and pain in my jaw muscles.

What are these lumps, since they are not cancer? Sarcoid? Calcifications? Does "scar tissue" make sense as an explanation (with no injuries or accidents)? How can I get them to go away?

 Tom Plamondon PA-C - Wed Aug 05, 2009 8:57 pm

User avatar Hello Grace,
I am at a loss for what the lumps are given that all the testing has shown nothing of significance.
I may speculate that the lumps are muscular related since there are located over the muscle. They could be balls of fascia which cover the muscles. If so, then treatment would be myofascial release.

All the best to you.

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